I'll just start from the beginning and see if I can make it through... (several blogs to come)
The first weekend in February of 2012 we found out we were pregnant with baby #3.
Things seemed normal at first, we had a sonogram at about 8 weeks and saw the healthy heartbeat. A week later I got a call at 7pm at night from my doctor saying they'd found something weird in my blood and we needed to get Daniel tested. Over the next few weeks we worried and waited for results. Turned out I had something called an Anti-E Antigen in my blood and Daniel had E in his blood. Basically (VERY long story short) at any point my immune system could begin to attack the baby's blood cells causing an array of various serious issues. And unlike some blood issues there was no shot or anything to prevent against it.
That was bump #1 in the road. We worried. And prayed. They began checking my blood each month to see if anything began to happen. It didn't.
At 16 weeks we found out it was a BOY. I was there alone, the nurse looked, it was clearly a boy. I made a cake and told Daniel & the kids that night. Ryder was ecstatic. His reaction was priceless. He couldn't even get the words out (which is rare for him)!
At 20 wks we went back for the full growth scan. The ultra sound seemed to be going normal, we even got a brief peek via 3-D at his little face. I did notice the sonographer was spending a little extra time on his brain, but nothing was said, things seemed fine. We looked at the pictures, Daniel left and went to work. (This is a theme you'll see... God somehow managed to get me alone to deal with a lot of things during this pregnancy!) I waited an hour and a half to see my doctor, texted the pictures, starting planning, thinking a lot of things through and then went in to see my doctor.
At that moment everything came to a screeching halt. My doctor calmly told me that there was fluid in the ventricles of the baby's brain and they needed to send me down to a specialist immediately. The next hour was a crazy blur of tears & uncertainties... as the rest of the pregnancy & beyond would be. The specialist told me my baby had something called hydrocephalus. Since we'd chosen not to do chromosomal testings they could speculate that he may have some sort of chromosomal defect, such as downs or much worse. I could do an amnio but since my placenta was on top it would pose even more danger than normal to my fetus. She also told me I could still terminate. Yes, at 20 weeks after I'd just seen a 3D picture of my sweet baby's face she told me I could still end that life.
I left that day with complete uncertainty of what would happen. I was to see the specialist every 2-3 weeks for the rest of my pregnancy and we'd "see what happens."
We prayed. Like we've never prayed before. I'd just read a book called, "The Circle Maker," and I began praying circles around this baby. 3 weeks later I went back. The fluid had shrunk! It was not gone, but it was at a manageable level. We would just watch and wait some more. As the pregnancy went on the fluid stayed level. It was still a big concern, but not growing at a normal rate for hydrocephalus. He was measuring small the whole time, but there was no real obvious reason for this. At about 28 weeks they found fluid around the baby's heart. They wanted to follow up soon after.
We prayed more. I went back in a week and it was gone! They told me to come back in a couple weeks...